Quarantined 2020

So it seems to me… I would have thought about blogging more as this all started… but I didn’t… in fact… i’m in the second week of this… and it just now occurred to me I may want to document some of this for future generations… So I start by saying this… good morning! The government wants to throw your parents into a volcano because people can’t hang out at Starbucks…

So those of us that can… are working from home… I bought a hospital bed table as a desk… only fitting

Image may contain: living room, table, screen and indoor
Why yes that is a giant cat tree in the background for Princess Fluffy Bottom Charlie Bosephus

If you happen to be my friend on Facebook… which you can only do if I know you in real life… much of this will be a repeat… but that’s what you get … you should’ve expected it if you know me in real life. Just saying… We humans are not the only ones losing our shit… overheard this morning in the kitchen from this fancy office of mine:
Smallest Child: You’re feeding them again?
Mr Amazing: Cats eat more when they are so insecure… its been a rough week.
Smallest Child: Awwwww poor baby! Don’t worry Shadow… you’re beautiful… you too charlie!!!
Me: BAHAHAHAHAHA
Mr Amazing: Food insecurity??

Apparently I do have very clear memories of living in Agoura California… the morning of the 19th of March I hopped in my car to check on my fairy city before work… when a pretty good earthquake rocked my car… I waited and when it stopped I went ahead and started to back out… thinking… no big deal… when my family came running outside terrified… and I realized… they had no idea what was happening… and I was business as usual … Wanna know a secret? I started nightly check ins with my adult kids over a weeks ago when I became a shut in… and it’s the best thing I’ve ever done. 🤣😂 highlight of my day. An earthquake… I couldn’t make this shit up guys… So that is the fear spoken of with my tinies.
I present an example-

No photo description available.

The earthquake prompted this public service announcement- I mean we have been drilling for this my whole life…. now the pandemic? thats a different story

<Uses cat carrier as a soap box> Well… That was disaster number… dude I’ve lost count… since my Grandpa Eccles died… right before he passed away he talked to me about space food and space water as I was a newly single mom and he wanted me to be prepared … he was a Scouting enthusiast and wanted me to be able to take care…. when the refinery exploded we evacuated without the super duper amazing 72 hour kit I had finally bought at his recommendation… when the pipes froze and the wind took out our power for a week … it sat in the closet forgotten… Corona virus prep- food and water bought- tasers ordered!!! it was still in the closet…. today the earth shook… and though it wasn’t HUGE and we had no property damage or anything- we prepared – we drilled- I demanded we review safety- and meeting places- water bottles put in the car… and granola bars 😬 no 72 hour kit though… Until now… as things have calmed down to the normal pandemic hysteria… we pulled it out… made sure it was up to date… and planned a little better… we also built princess fluffy bottom and shadow man an emergency kit… just In case… so use this time to be grateful… and remember all the things you forgot… we can do this guys! If my Grandpa could get me thinking that way… anyone can prepare-AND put together a pet emergency kit 🙂 wanna know how to quiet your anxiety? Have a plan. <drops mic like Moroni trumpet drops and puts the carrier by the door>

Yes – The Salt lake city Temple Moroni lost his trumpet… it was kinda the inspiration to some of the greatest puns and memes of all time and space LOLOL.

So many things happened as we were preparing to believe what was coming was really coming Covid-19, the outbreak… now pandemic… you will have to read what happened elsewhere… but since I am SUPER immune compromised… the BFG insisted I quarantine earlier than everyone was made too… which we are in the midst of watching happen now… and well Sundays just arent magic without these guys… social distancing sucks… but I’m grateful for for video chat… and filters 😍 love them sooooo much.

Image may contain: 1 person, sunglasses
Tall Child – The best mom I have ever had the honor of watching raise her 4 babies.
Image may contain: 1 person, sunglasses and selfie
She has 3 Boys!!!
Image may contain: 2 people, selfie and closeup
AND My baby girl!

We Leprechauned… and Set up Fairy City… and well…. I will have to share those happy stories when I am feeling more happy… right now I am just missing my people 🙁 Out of town visits planned before the #coronavírus – let us demonstrate #socialdistancing

Image may contain: 2 people, people standing, living room and indoor
Small Child and Danielle … Yes… thats my baby boy who at 2 years old made up the word Smiffbib…. then he got all 20 and shacked up with his girlfriend (who I adore btw) and well Smiffbib.

March 12th this isolation from work began… I left as much love and light as I had that day… and I know the world will look COMPLETELY different after this… if I am lucky enough to come out the other side… I will be happy… but honestly guys… if not… im good. I mean… not that I want to give up or anything… but the acts of kindness … the sheer beauty of the human spirit that rises up and shows itself when this happened… well… im so very proud to be part of it… and part of this race… and guys… it will get better… we can do better… always… but damn… im so proud.

No photo description available.

Okay- thats all for now. Understand this when I say. I am good. I have experienced more love… more hope… more joy… than any one person deserves. This life is beautiful and terrible and then beautiful again. I am here for it as long as it will have me… but if I had one thing I had to say today it is this… I LOVE YOU… I just fucking LOVE you… so much… people are good… so good… and we are such beautiful creatures of hope and kindness and curiosity… dont let anything take that from you… now… go do something… literally anything… to make things better. I Love you

Happy Birthday Mr Amazing…

Treehugger extraordinaire

I suppose writing letters to people on this blog has become “my thing” since I am not really blogging currently…. and although I have zero intention of going anywhere…. I would be remiss if I didn’t tell you today… If the sun were to rise tomorrow as it usually does… but this time without me in this world… I would want you to know how much I love, admire, and respect you.

We have some SERIOUSLY fabulous Hair!!!

You’re an amazing man… a man who has stood by my side through everything… and has loved me… supported me… and given my heart strength and sheltered me in a way I didn’t know was possible…. or needed…. you are my safe place. In the time that I’ve known you… not a day has gone by in which I wasn’t overwhelmed with feelings of gratitude and affection… affection I am not always showing…

Ummmm We are drop dead sexy…. just sayin
My Wheelchair Driver… I just can’t even.

You’ve lent me your ear when I’ve needed to vent… and you’ve given me advice when I’ve felt lost. You’ve offered unwavering support when I’ve been scared… You’ve even challenged me when I’ve needed it most… When I’ve been tired… you’ve helped me along. You’ve cried with me when I’ve been hurt… and cried for me when I’ve been sick. You’ve been my legs for a year now… and Benjamin… I cannot thank you enough for that. You have made this life so much better for me.

You are truly more than the love of my life. You are the most precious friend I could have asked for, too. I love you so very much, and I hope to be with you always–through every sunrise and every sunset… Through every “Hulk Angry” moment … Through every giggle… Through the Dog poop…. Through the lack of Cat poop…. Through job changes… hammer fists… laundry mountain…. all of it is us. I love us.

Bahahahaha!

I would like you to know that never in my life had I thought that I would ever find someone who loves me the way you do…  Not that I believed that I was incapable of being loved… well sometimes… but I simply could not fathom finding someone who could ever appreciate and cherish me in a way I could see it…

Maui!!!!!

You do that for me… It has been ten years… and I still feel… every single day… Important to you… Valued… loved.

I love him so

What exactly is a soulmate? Does every single person in the world have one? Do each of us individuals only get one shot at being matched up with one other person in the entire world? I don’t believe in soul mates… I do not believe in destiny… or any of that other sappy crap… but for lack of a better expression… You are my soulmate. You make my soul happy. You are my soul’s companion, and above all… my friend. I truly believe that there is not one other person in the world who gets my humor… which is so odd… my mannerisms… bizarre as they are… and my heart like you do.

Our Aina.

I want you to know how much I appreciate you. I tell you enough… but I do not know how to make you feel it or show it enough. You do so many little things for me that go unnoticed. I want to apologize for the moments when I am blind to see all you do for me… or resent it…. I want to apologize if I have ever overlooked your needs… I want you to know that even when I am incapable of seeing how lucky I am to have you… I still am forever thankful.

The Ojedas!!!!

I want you to know that our friendship means everything to me… and that I simply could not survive in this crazy world without you. You give me the truth when I need to hear it… courage when I need confidence… and love when I am flawed. There is no one else I would rather lay up at night and talk with about crazy things that only the two of us could even think of…. cue the 80s sing offs… and midnight “church services”!!!! There is no one else who I would rather travel with… see the world… and experience new adventures with. There is no one else who simply could ever get me the way you do.

Mine Addy!!

You have given me a safe haven to be myself and not be ashamed of all of the parts that make up my soul. You give me security that makes me feel safe and centered… a shoulder to cry on when needed and a hand to hold when I am lost and scared in the dark. I know that whatever life throws my way… I will be able to handle it because you are at my side. There is nothing that we cannot face together. Without you… I am whole. But with you, I am complete. You help me believe I am strong and capable of anything I set my mind to.

So Much Fun!!

I want to thank you for giving me love when I am undeserving at times… For your forgiveness when I make mistakes and hurt you with my daggering words and actions… For your kind and gentle touch when you comfort me… for your ability to apologize when you are in the wrong and take responsibility for your actions… I mean… your ability to do so is so strong that you do it even when it is not yours… You have taught me so much about tenderness and unconditional love… even when it is hard to give.

Cutest Family on this PLANET!!

I want to thank you for your continued support and faith in me as I journey through my adventures. You have never once doubted me… and lover… I come up with some up some crazy stuff… you’ve never told me I should give up… or told me that I could not do something… in fact… you have tagged along and encouraged the madness. My positivity and confidence in you continues to baffle you each day. But don’t you realize… You are my support system and my fan club… my motivation to push myself and always reach for bigger and higher and more ridiculous goals. You have taught me to believe in myself and to appreciate my own worth… a task that is not always easy.

The Science March

If you ever feel like I am taking you for granted… or question what it is I see in you…. please open up this letter. Let it be a reminder of how I feel about you and your worth to me. Please remember how much I love you. I mean… I really love you. I love you deeply… and I always will.

Why is he sooooooo Handsome???

If I were to suddenly leave this world sooner than later… I would be overjoyed that I experienced such a rare and honest form of love. To have been loved and cherished by someone wholeheartedly is a once- in-a-lifetime experience… and the feeling is mutual. Big Sexy. 

Happy Birthday BFG… and many many many more!!

My dear oldest child,

Today is your birthday – a milestone birthday… And I finally remembered to blog on it! It truly seems like just yesterday when you came to my family… I can say My… Because I am the constant in our ever changing modge podge magical family.

You were young and confused… and most days as we continued down this road to happy destiny… it really felt like it was just you and me against the world.

From day one… you taught me one of the most precious lessons humans can learn – how fierce love can be.  You made me realize a mother lion lived inside of me… and I have called on that lion multiple times to your benefit… your brothers benefit… and Miss B’s as well. My lion is a timid kitten compared to what yours has evolved too… never… never in my life… have I seen anyone better being a Mom… than you.

I had you through your school years… I believe your zeal to discover and understand coupled with your ability to acquire knowledge so easily molded you into the smart hardworking woman that you are today.

I worried a bit as moves or other circumstances beyond our control caused a change in schools every couple of years for you, but those experiences seemed to give you confidence, a sense of adventure, and the ability to make new friends.

I blinked once more and Dad and I were unloading the car and moving you into your college dorm room… so proud of you and your accomplishments.   Accomplishments are not measured in degree…. income… or any of the other little check boxes society gives us as a road map… they are measure in Joys… and you have many.

My angel girl, you have amazed me  As you reach this milestone birthday – your 30th – you have accomplished so much.  You have proved how adventuresome you are. How strong you are.

You demonstrated your bravery and independence when you’ve taken changes and even set-backs in stride and your strong belief in the good in the world.

You are funny.  You are loyal.  You are intelligent.  You are assertive.  And you are so much more daring than your mother! 

You are determined whether it is running half-marathons (I don’t speak runner… whatever the running thing is you are doing LOL) or accomplishing a task in the most accurate… precise way.  You always strive for the best and even though you think you’ve not always succeeded, to me you always surpass! I always feel like you think I am biased… so I always tell you the things I overhear… The BFG is continually mind blown over how much you have accomplished… You have always been your brothers hero… and now you can add Miss B to that list of people looking up to you as well.

Beautiful at 30. So Beautiful.

How can I even begin to explain how much I admire these things about you? 

This birthday might cause you a bit of trepidation… but do not fear. Turning thirty is just another milestone in the journey of life. I am so proud to be witness to yours. I am so proud to call you mine. I’m so proud of you.

The years to come will be amazing; turning thirty is just the beginning.  

I know the Universe has big plans for you too. That you can count on. And you can always count on us to cheer you on!

Happy 30th Birthday, my beloved and beautiful daughter! My Angel Girl.

I Love you… always,

Mom

Happy Birthday Young Man. Teen No More! (I need a tissue)

Twenty years ago today… you alone forever altered the framework of my life… transformed the tapestry of my very core.

You made me a mom.

I loved you from the very beginning, from the moment I saw the two faint blue lines etched across the tiny display window of the home pregnancy test.

I loved you when you were the size of a Lima bean, and then a tangerine, and then a grapefruit, even as I wondered why every pregnancy book insisted on comparing your growth to a fruit or a vegetable.

I loved you when you made your much-anticipated debut from my womb, blue eyes and peach fuzz head, 10 perfect fingers and toes. I loved you through those hazy newborn months, when you weren’t able to distinguish between daytime and nighttime, when the magnitude of my new role weighed heavily on me, sleep deprivation and forcing me to worry incessantly. There was so much to worry about. Would I be a good mom? Could I keep you safe? How was I supposed to mold and shape you into a kind and happy and well-adjusted human being? Where was the playbook?

I loved you so much.

I loved you as a toddler, sharing your passion for Blues Clues and Dora the Explorer, delighting alongside you as we poured through an endless supply of pop-up picture books, as we staged elaborate arrangements, first of blocks, and later Legos, trucks, Super Heroes.

I loved you through elementary school, accompanying you on field trips and chauffeuring you to the orthodontist, relishing all of the afternoons we played at the park — looking for gold at the end of the rainbows… chasing the thunder.

I loved you as a teenager, even as you forged your independence and stretched away from me, even when it sometimes felt like you were incapable of conversing with me, the words coming as sparingly as when you were a baby. I loved you when you made mistakes… I love you when you quit things…. I loved you in the U of U auditorium, where I spotted you on the jumbo tron playing your viola for the last time I have seen you, your graduation cap igniting tears of pure pride that burned my eyes.

I loved you when, after 18 excruciatingly short years, I finally had to leave you. At your first apartment, when we drove down to make sure all the windows and doors were locked. I loved you with my heart stuck in my throat and hot tears streaming down my face as I said sweet dreams to you there. I tried so hard to squelch the heaving of my chest as your strong arms wrapped around me, comforting me, telling me it would be okay. But I failed. I couldn’t stop it. Just as it had on the morning of your birth, my heart refused to be contained.

I loved you with a sprinkle of tough love when, halfway through your first year of college, you wanted to quit. And then, teeming with a newfound respect, I loved you from a distance, standing back as you mapped out a new course for yourself, watching as you worked and climbed a corporate chain ladder.

I loved you when you drove your HUGE STUPID motorcycle to work the first time… and you text me that you were still alive.

And I love you today, on your 20th birthday, on this hearty milestone that officially marks your passage from teenager to adult. I love the young man you have become. I love your determination and your work ethic, even if I sometimes wish you weren’t so hard on yourself. I love your sense of humor, and the way our eyes can lock across a room and invariably share the same thought, with not a single word exchanged. I love the way you always text me when you have solved your problems… though one day I hope you let me help

I love the way our relationship has developed and evolved and matured, and I love the promise of how it will continue to unfold in the years to come.

But perhaps most of all, I love you, quite simply, for making me the person I am today…. because honestly… we are awesome… both of us.

Happy Birthday Angel Boy… Bug… Neenerfan… My Baby.

I am so proud of you.

Happy Birthday Miss Sassy Pants! 13!!

First … I just want you to know how much I love you. It’s hard to explain, some people can’t really understand how a mom can love someone else’s child like their own. I do though, I love you daughters that are not mine… I love you and Tall Child so much. So… here I am… your proud stepmom, and I love you more than I can put into words.

Now that you’re a teenager, I wanted to tell you some things that I wish I had known when I was your age. I know you probably won’t take them seriously, as I most likely would not have. Try, though. They are all truths for every single one of us.

  • School ends. I hated school. I hated the people. I hated being around such empty-headed, shallow people who only cared about their clothes or the boy they were dating. I hated the teachers and the classes. I hated doing homework and presentations and group projects. I hated it all. I experienced bullying. I wish I could go back to that girl and tell her: it ends. School ends and it’s only one small, tiny, sliver of your life. In the moment, it feels like it will take forever to end but eventually it does. Eventually, you look back and realize that the things that go on in middle school and high school are not going to matter in just a few short years, and worrying about them is nothing but a big waste of time. School ends and you get to make your life what you want it to be.
  • Worrying what other people think of you is a waste of time. Check this out:

No matter how perfect your hair is, or how talented you are, how much money you have, how beautiful you are in your photos, how fashionable your clothes are or how sweet you smell, you’re still going to get people who don’t like you. It happens to every single person on the entire planet. There is nothing you can do to avoid this. People who hate are unhappy with themselves. The smarter, more beautiful and more talented you are, the more you’re going to attract people who like to hate on you. It’s got nothing to do with you though, even when they say things that are so personal and hurt so much. It’s not about you. It’s about them. Sweetheart, I am not just saying this because I love you, but they see something in you that they wish they had and it makes them upset that they don’t have it. That’s why they hate; that’s why they lash out. It’s not you. The best way to deal with these people, is to take it as a compliment and ignore them.

Don’t post questionable pictures of yourself online. Once something is on the internet, it’s impossible to take down.

Don’t believe everything you hear or read. Consider the source of what you’re reading or hearing. Does the person telling you this stuff have something to gain if lots of people believe them? Especially money? Fame? Power? Some people do a really great job of fooling the world, but they are still liars.

Protect yourself from being hurt by people like this by questioning everything everyone tells you. Even me.

Don’t quote me on this LOLOL
  • Stand up for the things you want. You’re not going to be 13 forever and you’re not going to be a teenager forever. It goes by really quickly – Don’t let other people tell you what you should want. Don’t let other people change your mind when it’s something really important to you. Even if other people don’t think it should be important to you, that’s simply not for them to decide. You are the only one who gets to decide who you are and what is important to you and there are zero wrong answers to that.
  • Stay close to those who will go to bat for you. The people who will step into the ring and take a punch for you (me, your dad, your mom, your sister, your brother, the dog) are the people who will be around the longest. They will be there when you need help. They will cheer you on when you’re accomplishing things. This is your support group; the people who are your biggest fans. Friends come and go (even best friends), boyfriends come and go, neighbors come and go… but your family… We got your back.
  • Talk to us. There is literally nothing you could tell us that would shock us or that would make us love you any less. I was once a teenager and I would be willing to bet that I’ve done just about every stupid thing you can think of. No matter what you say, we are on your side. This is a lifelong promise.
  • Never, ever let yourself be too afraid to say no. Unless it is to me or your dad asking you to do your chores. Not saying no when you want to can lead to some very scary, very real situations that you can’t reverse. If someone stops liking you or stops wanting to be your friend because you’ve said no to doing something that makes you uncomfortable, they were never your real friend in the first place. A real friend will want you to be happy. A real friend would never pressure you to do something that makes you uncomfortable. A person worth keeping in your life will respect the fact that you’ve said no and love you just the same.

I know life is weird right now. Everyone around you is changing and you’re being given more responsibility and expected to understand more.

I just want you to remember one thing that’s kinda cool about a stepmom: I chose you. I chose to be part of your life. I did not have to be. I chose to get involved and to spend time with you and get to know you. I didn’t have to do that. I chose to throw you birthday parties. I have chosen all of this, and I chose it not just because I love your dad, but also because I love you. I knew there was something special about you the moment I met you and I knew I wanted to be part of it. I’m so glad I did, I am so effing glad I did. You have changed me and helped me grow. If there is just one thing that you take away from this today, it’s that you’re worth fighting for, you’re worth protecting, you’re worth loving. Especially, and I cannot emphasize this enough, especially by you. Love yourself. Protect yourself. Stand up for yourself. You are worth it.

Your Stepmom.

Spring Equinox – The Season of Equality

In Latin, equinox literally means “equal night.”

What is Equality?

Equality is not always about treating everyone the same – it is about treating people in such a way that the outcome for each person can be the same. This means putting things in place to support people to achieve similar outcomes. By not putting supports in place exclusion is usually an inadvertent result.
I honestly believe we can cure much of what’s wrong in this world if we simply supported the people around us.

Equality is not something we get to dictate any more than the Sun gets to dictate its time to the Moon…

Equality…  at least to me… means that no one is harmed or held based on the things that make them different.

Equality to me means that a person can celebrate their heritage as an African…  or a person of ANY decent or religious belief… but they do not have to suffer… blown up churches… being gunned down in churches… night clubs… schools… theaters… Police Brutality… Human Brutality….

Equality to me means that a person can understand and celebrate her sex and his gender and they can CHOOSE the kitchen or the workplace… the family or the career… or  CHOOSE both. And they can do that as a free and equal member of society.

Equality is also about choice.

Equality to me means that indigenous peoples to this land can celebrate their heritage…  and protest the injustices brought on to them by hundreds of years of a complacent population.

Equality to me means the person who is gay… or bi or pan… can marry whomever they want… and they can be equal in the eyes of the law

Equality to me means that no matter your income level… your upbringing… your location on the map… your skin color… your parents income level… that Education will be available the same to you as it is others with different privileges… HEALTH CARE TOO dammit!

I believe these things with all of my heart and soul…

Apparently I am now a seasonal blogger btw.

Winter Solstice 2018 – A season of story telling.

According to the National Museum of the American Indian
The winter solstice begins a season of storytelling and ceremony… I would like to spend a few minutes of this solstice wrapping up my unfinished story… and begin on a fresh page… my new story. (and after you read that, I really do recommend reading the article from the Smithsonian above… its kind of amazingly perfect)

For some history…. THIS and then THIS

But if you have been following along these sporadic… every 60 to 90 days postings… I believe I left you here…

I blogged about the tumor arriving two days after they removed it… I blogged about it being the size of a grapefruit or softball… before my post op check… and before pathology… and before anyone told me the doctors had kept me in surgery two hours longer than anticipated… Darth Lumpious was 13.5 centimeters… It was an eggplant not a grapefruit… and then pathology came back, although as predicted… it was benign.

Recovery did not go quite as expected…. obviously a tumor that large left a very deep (Multiple tissue layers sliced and stitched) very large gap in my leg… it also has permanently atrophied my hamstring and nerves… My skin did not grow and heal like one would expect… staples stayed in twice as long as normal… my body never began to heal and push them out… so we removed them… and began wound treatment….

This bloody mess of a bathroom was after the initial clean up after returning from the ER… and when I finally decided that I needed a photo… This is all that was left… but I lost over a gallon of blood that had collected in the gap left… and filled and filled until it burst through the incision and all over my house… car…. husband… and ER…. RIP Towels Bathroom rugs and Clothes lost in the massacre. (FTW Cat Litter Absorbs Blood!!!) So here I am, almost 90 days out from surgery, and the initial incision is healed… still working on the under layers of tissue (Sutures are still there)… I will walk with a cane the rest of my life…. anything longer than a city block… and to be honest… more than that some days if it is cold… or I pushed too hard … I was angry about this at first… but then someone reached out to me… offered me a loved ones cane… left behind when he left the earth. Suddenly I understood using a cane was a privilege… and I gratefully accepted it.

No Leukemia, Tumor Benign, Left with no other diagnosis… I was finally given a diagnosis of Negative ANA Lupus. Which if you have watched House MD, you will find as much comfort in this as I do…. Bahahahahaha… Of the 11 markers of Lupus, I have 5… but not the Positive ANA 98% of Lupus patients have… So rheumatology is where I am headed… and I am sure they will be able to help me… My fever of unknown origin has been back for a several months… and is now manifesting a new symptom… I am unable to regulate my body temperature…

And during all of this life moved forward….
I manage my desk job… Mr Amazing runs the house… Cooks… Shops…. Covers me in blankets and removes my boots… To the moon and back doesn’t adequately describe my love for him…. It is the size of the Universe!!!

The Shit he does for me LMAO!!!

Tall child had a birthday party that will go down in history… Christmas has come…

Where all fairies go in the winter.
Even a little Christmas Magic occurred.

I have lost some friends…. memory… and ability.

But I have gained so much (yes… weight as well)

I am so grateful to be alive… I am so very grateful for my Talls, Smalls and Tinies… I have friends that never left… even when I forgot about them. (I forget everything currently in case you are wondering… I’ve had to scroll back to the top of this at least five times to see what I have written) … I do not know what I did in my life to deserve all of this… but it must have been good.

Oh… Did you really read this all the way to the end???
You get to see the CUTEST KITTEN ON THE PLANET THEN!!!

Darth Lumpious… The Tumor dressed in Star Wars attire.

Meet Darth Lumpious

A few weeks after the bone marrow biopsy I got what Dr Google convinced me was sciatica … which is pretty normal after such a procedure… however the weeks that followed slowly showed me that is not what it was… rapidly and uncomfortably this mass grew in my leg… I can talk about it now… because it is out. 48 hours ago they sliced me open and removed it… it shows characteristics of being benign…. meaning no tentacles or teeth id assume? although it would have made for a funner blog post if it had …. ha!

Created for the National Cancer Institute, http://www.cancer.gov

Darth Lumpious measured somewhere between the egg and the peach on this helpful little comparison chart.

We do not have the pathology back yet… but i’ll take the lack of teeth and tentacles as a good sign… I have good drugs… and a positive attitude and truly the most supportive loving tribe on the planet.

Mr Amazing has been by my side the whole time, and I am not always a model patient… I do not know what I would do without him. I cannot even begin to imagine what this has felt like for him… and he offers to help with everything while repeated being snarled at that I can do things myself… he still offers… I love him so much.

My Smalls have been helpful… and my tinies have been my comfort leading up to this.

My Charlie Bosephus… My favorite gift of all time and space from Mr Amazing has been the cutest side kick to recover with ever…

There is so much more to this story… and if I were not completely mind numb from pain pills I would entertain you with stories of the two surgeons who didnt want to touch it… and the two hour MRI where I was positive I was going to die in there…. and the Ultrasound tech who had no poker face… but I will save that and leave this as a simple update and record of whats happening in my world.

I am so grateful for everyone in my life… I cannot even begin to imagine what I have done to be so lucky to have them…. Life is good… the lump is gone

Im just catching up with yesterday… By tomorrow… I should be ready for today…

I am home sick today… I woke up at 5 am with vomit in my mouth and ran for my pee slime covered toilet… next to my Charlie Bosephus’s litter box. Really an eye opener into the quality of my life .. but really things obviously have not changed that much. I literally laughed out loud typing that… and surely I will publish this.

I do not know how to bridge the gaps in my crazy story of a life… I last left off with I had started therapy… Im going to take one step further back and tell you about the time my “Fever of unknown origin” sent me to the ER… which then led me again to an infectious disease doctor… although I do not believe that is where my latest journey started… I believe wholeheartedly my journey started with CMV… a few years ago… and this is my second infectious disease doctor… It was in the beginning of march I went to his office… and I had been told I was the very first patient he had seen since arriving in the United States. So in he came… and started to question me about what had been going on… and I listed off for him the same ridiculous list of viruses I have been listing in previous posts… but shockingly… my fever had finally gone… as mysteriously as it had arrived 5 MONTHS PRIOR… and he looked at me and said. “So you are not sick now, I do not know what to do for you”… and guys… I lost it… I cried… this made this man extremely uncomfortable… so much so that he had to leave the room… but when he came back he was curious why I kept crying… and I told him that it was so awful… so awful that I was seeing a counselor over it.. that I was so tired… and my legs hurt so much… all the time… and I continued to cry… so he left the room again.

Then he did something. He hand wrote orders for a VERY specific blood test… that could only be given in a blood hospital… it was like a super secret blood hospital… but they wouldn’t do the test… because you see… I do not have aids… and security escorted me out of the special super secret agents of shield blood place. They sent me to another lab down the road who after an hour of calling around did the blood work required… blowing out a vein in my arm and spraying this young technician in blood making her look like a serial killer… it was gross… and then they didn’t refrigerate the blood like they were supposed too… and a week later I had to do it again.

30 days later this doctor… the first one to do something… called me… he said to me “I have found an immunologist that has agreed to take your case… he probably won’t be able to diagnose you… but he may be able to help you” i cried again and thanked him profusely… he told me that he had found a very serious problem in my blood work and I was very sick… his english was not perfect but he insisted that I was sick and if I felt sick, I needed to let myself be sick.

Two weeks later the Immunologist called and said he would be wasting my time bringing me in to see him… that I needed to go to the cancer hospital… as soon as possible… that I had an abundance of abnormal lymphocytes in my blood… and I needed to have a bone marrow biopsy… and be treated.

<cue the circus music> you can imagine what this did to our mental health. School ended and we took our annual trip to the lake… add 2 bouts of Hand Foot and Mouth and one VERY ugly bone marrow biopsy/harvesting and in the first week of june I sat in the Cancer Specialists Hematologists office for the results. I do not have Leukemia. The abnormal cells are not coming from my bone marrow.

<Cue the circus music again> July we celebrated birthdays. and another round of Hand Foot and Mouth.

Here we are in the first week of august, they have drawn blood again and I will see the immunologist finally in a few weeks when he has those results.

Today? Today I think I ate something bad last night for dinner, or have a quick coming and going stomach bug.

Small child got me a sprite and made me an egg before he went to work.

I called (okay texted) in sick.

I have not had a fever since March. Well not one of unknown origin at least… Hand Foot and Mouth brings one

I am still seeing the therapist, about once a month, to make sure I am not tanking mentally and emotionally.

I am slowly building my stamina up on energy… I am usually good for one outting a day… most days that is work… on the weekends… it is something a little more fun… and then I am on the couch or in bed other than that…. this last month I have been doing better… been up for a couple of outtings. Mr Amazing is doing all of the house work… grocery shopping… cooking. I would be completely lost without him.

I have asked my family in my home to be there for me … and they have… I have not reached out much beyond that other than a shoulder to cry on…. or usually scream my frustration into. and I have not been available for people reaching out to me for company or help. That is hard for me to swallow. But I have been honest about it. I am doing what I can. This is it.

Today I washed the puke out of my hair and blogged about it. This is progress. Not perfection.

 

 

Tears… Jeers.. and Cheers! Happy Birthday Johnathon!

On this day… just 19 years ago, I gave birth to a tiny premature baby boy… who was not supposed to arrive until the First of September.  With beautiful blue eyes… dimples right at his tailbone… and head full of blonde. As soon as my eyes laid on him… it was immediate earth shattering love. The kind of love I never thought I would experience, anyway. My pregnancy had been one filled with drama.. hospitals…   and doubt, but it didn’t matter anymore.

It would be me and him, against the world, and I felt so proud to be blessed with such a happy and healthy baby boy.

I’ve blogged many times about the trials and tribulations we both experienced as a we have trudged this road to happy destiny… much to his chagrin I am sure…  But none of those events and episodes dampened the love for my child… or his love for me. With every mistake I made… tear I shed…  and wish I dreamed… he was there next to me saying that it would be okay. I’m sure his young eyes saw more than he should… but I know that because of that… it cemented his moral compass to his heart like a badge of honor.

As a young mom… I often overcompensated when I could. He was probably given more than he should’ve been at times.  When you are a mom… you make mistakes; and when you are a struggling through divorce.. illness… and career mom, well those mistakes are raised tenfold. I did the best that I could. But my son never judged me…  never wavered.

I never knew unconditional love until I experienced it from my boy. I learned to love unconditionally the moment he arrived.

Now he’s all grown up, and we aren’t living apart again yet (Though he did give me a crash course in that earlier this year). We speak on a daily basis but it’s not the same. He’s matured and grown during the few months he was away and I can’t help but to see that little boy becoming a man.

I long for the days when he used to call me Mommy and beg me to read him a bedtime story. Those days are indeed gone I suppose.

Being a mom on an “adult” is new territory for me. Loosening these apron strings hasn’t been easy, but I know for both of us to continue on in our lives, it has to be done.

So each day, I get more and more strength to not over-parent… over-love… over-mom him.

He probably has no idea that I lay awake many nights thinking of him, wondering if he is making the right choices. All I can rely on now is the fact that I parented him the best way I knew how; he’s earned his wings and now I can watch in the stands as he takes off and flies to his destiny.

The cheers are for how proud he has made me. Jeers for the times when I text and he doesn’t immediately reply. Tears as I mourn the little boy he used to be as I get to know the man that he is becoming.

I love you, Son. Happy Birthday.

Mommy.

Image may contain: Johnathon Pack, smiling, motorcycle and outdoor